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« on: August 19, 2011, 09:39:53 AM »

A question from a nervous mom:

A question for parents with more than 1 child w/ T1DM. How early can you tell when another child in the family is developing diabetes? Before even getting to the frequent bathroom visits point. We just did some bloodwork on another daughter of mine for food allergies and A1C is within range but at the highest it should be while fasting. 5.6 Thank you in advance for sharing your experience.
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« Reply #1 on: August 20, 2011, 09:43:51 AM »

Some great comments from FB:

 Meri--My advice is don't worry until you have to. Worry is putting a down payment on a problem you may never have. (Just got one on facebook a couple weeks ago. Smiley I have three T1 boys, and with the second two it was simply asking for a glass of water within minutes of already having one. My last two were caught so early they were without insulin for a good three months. I get emails ALL the time about this, and 99% of the time all works out in the end! I used to tell people no worrying allowed until they get a number over 200...but I've had friends get that number and months, even years later their child was never diagnosed. It is normal to be worried, but keep the faith that all is well! Good luck!

Andrea-- My youngest is involved in a trial-net program designed to detect and possibly delay the onset. Sick Kid's in Toronto do an annual blood test on family members of people with Type 1 to check for early markers. So far nothing - Grace. Apparently they will be able to detect the markers years in advance of actual symptoms and tell me when (age) and if she is going to develop type 1. Log onto www.diabetestrialnet.org to see if there is a similar study running in your area.

Ruth-- I'd agree with not worrying too much until you have something definitive. My second ran for the bathroom 3 mornings in a row, the third time he missed entirely and that was the sign. Try checking fasting BG in the morning then give a REALLY high carb breakfast. Pancakes with plenty or real syrup and juice. Or donuts and juice- something ridiculous. Then test 2 hours post prandial. If the number is acceptable then breathe and just keep an eye on things. If not, call the endo. You know you can't stop it, you know you're on alert for it coming and, most importantly, you know what to do if it shows up. I'm sorry you have to think about it, sorry we all do.
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