Newly Diagnosed with normal blood sugars

[wifemommedic]

My son has been sick for several weeks and were searching for answers.  During blood work his glucose came back as 196.  The next morning we repeated just in the office and it was 86 - he had not eaten in 20 hours.  After lunch that day it was 220.  We went to the endocrinologist the next day and fasting was 84 with an A-1c of 4.7   The doctor said we just caught it early and started us up with all the supplies.  No insulin yet but checking sugars 4 times a day.  My question is he seems to be doing better.  His sugars are all over the place.  His morning fasting is always below 100.  He has had 3 post lunch of 160 or greater but most pre meals are 80-100.  Has anyone else had something similar during the early phase?  I don't want to get to be in denial but it seems too stable to be diabetes.  He does not have the excessive thirst or urination.  We are still waiting on the antibody tests.

Anyone have advice
 






22

[londonmum]

Hi, I don't claim to have any advice but can tell you about our family's experience. My 10 year old was diagnosed 3 years ago with T1 and that made us more aware of our younger son and the possibility he might develop T1 also. One night he was bad with an asthma attack and was on prednislone to help control it. He went to the toilet about every half hour that night so we tested and found he had a BG of 20mmol (about 360mg). Initially they thought it was the steroids that caused the rise but they waited for them to clear his system and then ran tests and confirmed that our youngest also had diabetes. He never had any of the classic symptoms either, he only went to the toilet frequently that one night and never suffered from excessive thirst or weight loss. He was started on 2 units of lantus a day but even that was too high initially and it was dropped to 1 unit. He was on 1 unit for a year before going to 2 units.

It is now 18 months later and we have just had to introduce novorapid to all his meals now, but essentially he was honeymooning for that long period of time. His body is still producing some of its own insulin almost like a basal insulin, which helps. At first I was convinced that both us and the doctors had over reacted because his glucose levels were always normal pre-meal and even now they are good but two hours after a meal his levels rocket up, which is why we have now introduced the novorapid.

Don't know if this was any use but I wish your family the very best, let us know how you get on with the antibody tests.

[karen081995]

This is all very interesting.  My oldest daughter is 12 and has T1.  But, She tested negative for antibodies.  At first, They did alot of blood work to try to see why she had a negative antibodies test but had blood sugar of 350 and ketoacidosis.  So, They decided that the test was wrong she did have T1 with a negative test.  They said that can happen sometimes.

Now, My younger daughter is thirsty all the time.  After meals her blood sugar is sometime 180.  But, Then in the morning it's ussually 105.  Her A1C was 6.2.  So, They told me she is in the prediabetic stage.  But, They can't tell me how long this will last before she becomes diabetic.  I wonder if she should be taking small amounts of insulin after meals.

[Karen]

My 8 year old is type 1 diabetic and we had our 3 year old genetically tested and he shows 4 out of 4 markers for type 1 diabetes (he also has kidney disease/FSGS).  The doc says any time in the not to distant future he can be diagnosed, either full force or very slowly with type 1.  He is also on prednisone every other day so his Blood sugar is always elevated those days (always has dark circles under his eyes and is always thirsty on pred days).  It is coming....but not really sure how it will show it's going to show it's ugly head (diabetes).

[wifemommedic]

Thanks for all the replys.  It is just so much to process.  He has had 80-90's in the morning but he is running 160-170's after meals.  I have a feeling on Thursday they may introduce a low dose insulin.  I guess it would be almost easier if he would just jump off the boat and start to show consistant numbers.  I guess no one wants to hear their child has a life changing diagnosis.  I think the hardest part is seeing this star of a student so tired and having a hard time concentrating.  The dark circles under his eyes just break your heart.

[cchilcote]

Our oldest son was diagnosed at age 6 after 2 yrs of seeing doctors for multiple illnesses. Some would say it was normal while other doctors felt I was on the right path of diabetes but it just wasn't quite there yet. Our youngest son woke up with a low blood sugar of 27 when he was six months old, was given 45 grams of carbs and shot up to over 200 within 20 minutes. Since then he has been monitored and on a strict whole food diet. If he eats processed high complex carbs then he is immediatly over 250. His highest has been 386 and that took 3 days to get back down to normal range. He tests negative for antibodies but his range has increased a bit every year. Some doctors suggest he take a low dose of insulin, but our doctor won't allow that. His last A1C was 5.9 and they say at age 3 they are more concerned with brain development. So he is diagnosed hypo/hyperglycemia prediabetic symptoms and as long as he eats little bits of whole foods throughout the day he stays pretty close to range.

[TootsMama]

I am experiencing much the same thing with my three year old. He has been hospitalized and monitored repeatedly. Undergone every type of testing that they can come up with and they are still referring to him as 'pre-diabetic'. He typically shows at 80-109 first thing in the morning, but then throughout the day his numbers bounce all over the place (typically we check him 4 times a day.) His numbers have gotten over 250 many times and the doctors just don't seem to think he is regulated enough. This week we have been struggling with exeedingly low readings only to have it spike shortly after. He does not have the anti-bodies, but we were also told that a small group of children are t1 without antibodies. He is being seen by a great doctor, but I am frustrated watching my little boy feel so miserable so often. His doctor's response is, 'I fully believe that he will be diagnosed with type 1 diabetes, but at this point I am unable to tell you exactly how far down the line this diagnosis will be.' I wish there was something that I was able to do to help him feel better ...

[artziphartzi]

Is there a reason you only test four times a day?